Christy and I just got back to the hotel from our morning visit. Brycen is a trooper and is doing great. His vital signs remain normal and above, so the condition is still not life threatening. We arrived to visit at 4 am and stayed until 6:30. He slept most of the time we were there but recognized our voices when we arrived. He got really upset about 5:50 and that was hard to watch, because we can't hold him and he just seemed to be uncomfortable. In every ultrasound we had done, his left hand was always around his face or on his cheek. This morning, he kept trying to put his hand on his cheek, but he can't get it there because of the IV and the brace they have supporting it. He was obviously trying to get his hand there and couldn't and became quite upset. After about 5 mins, the nurse tried to reposition him some, but he still kept crying. Then she changed his diaper. Once the new diaper got on, he quit crying and OPENED HIS EYES. We looked at the clock knowing it was about time to go and it was EXACTLY 6:14, the time he was born. He was all eyes and smiles for the last 15 minutes we were there!
We talked to Dr Ross this morning (he hasn't left from yesterday and will be there all day today....these doctors are THE BEST!) and he informed us that there are 2 other children there with the same condition Brycen has. Because Brycen's is not life threatening and least severe of the 3 children, he won't have surgery until tomorrow. As Dr Ross put it, "until then we're in a holding pattern." We hope to be able to talk to the surgeon this afternoon to find out all the details for what will happen during surgery and when it will be.
I have pictures of Brycen, but they are all on my cell phone. I am as cell phone and computer illiterate as a guy can be, so if anyone knows how to get the pictures from phone to computer, please email me and I'll try to get a picture or two posted.
Again, cell phone use is VERY LIMITED between signal strength and restrictions, so please check this blogsite for updates and then inform others of the news.
Thank you for all your prayers and support. Keep them coming and not just for us and Brycen. There are hundreds of children at this place that are in much worse condition than he is. We are so blessed to have our little guy!
We love you all!
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